How The National Cancer Registry Accesses Personal Data
For over 30 years the National Cancer Registry (NCRI) has been collecting, classifying, recording and storing information on all new cancer cases in Ireland.
Did you know that NCRI may collect data about you?
NCRI collects information on cancer cases diagnosed in Ireland and other related personal health data. It is authorised by law to do this for public health and cancer research purposes.
What does this mean for you?
If you have received a cancer diagnosis it is likely that NCRI holds information about you in its records. NCRI obtains your information directly from hospitals and other health care service providers. NCRI may also collect relevant information about persons who have not been diagnosed with cancer, for example, participants in cancer screening programmes.
How is your information used?
Your information is used for:
Public health planning
Monitoring and evaluation of services
Patient care improvements
Epidemiological research
Funding and resource allocation
Advocacy and awareness
How is your privacy and confidentiality protected?
NCRI is fully committed to respecting your confidentiality and privacy rights. Its team of experienced Electronic Cancer Data Registrars (eCDRs), IT specialists, researchers and data analysts is committed to maintaining the highest standards of data integrity and confidentiality, and respecting the privacy of individuals. Security measures are of utmost importance. Strong encryption protocols, multi-factor authentication, regular security audits, and strict access controls ensure data remains protected and secure.
For further information
You can read more about the work of the NCRI and your data protection rights on the NCRI website:
www.ncri.ie
If you would like any additional information please contact:
Data Protection Officer
National Cancer Registry
Building 6800, Cork Airport Business Park
Cork - T12 CDF7
Tel: 021 4318014
Email: dpo@ncri.ie