Where does the data come from?

The National Cancer Registry collects cancer data itself.

Most registrations are based on ‘active’ data collection whereby trained Cancer Data Registrars (CDRs), based in hospitals around the country, access a range of data sources to identify all new cancer cases and register all relevant patient, tumour and treatment details.  Hospital pathology reports provided to the Registry shortly after diagnosis comprise the bulk of the information providing data on approximately 85% of all new cases.  Most pathology reports are registered manually by the CDRs but data is also provided to the Registry in electronic format from some pathology laboratories (currently approaching 33% of all pathology reports). 

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